Quote: “Faith believes in spite of the circumstances and acts in spite of the consequences.” Adrian Rogers
I ended the last post saying that I needed to buy 2 pairs of reading glasses. That was out of the ordinary for me as I did not require glasses to read. I was starting to struggle reading the paper. Something was happening, but I did not quite know or understand. At that point my distance vision was still working 100 percent. On January 11, 2021 I had a follow up appointment with Dr. S-2, the oncologist. He advised us to keep a close eye on the vision as the possibility existed that the vision loss could be due to one of the rarest side effects of the Immunotherapy.
In the last post I also advised that they put me on “Dex”. Thinking back now, that was an interesting 4 weeks while on that drug. I am a talker, but on that drug I never stopped talking. I slept on average 2 hours a night and I had lots of energy. In early January I spent my waking hours taking down the Christmas decorations, I watched many great movies during that time as well, and was on the treadmill at 3 or 4 in the morning. On one occasion Roxanne woke up and had to come and tell me to turn the volume down on the TV it was blasting through the house. The final equation, I was eating at all times, I could not get enough food. Dexamethasone is a powerful drug that helped to reduce the swelling on my brain, but it did make for an interesting month. I have since talked to others and they all say the same thing about the drug.
January 13, 2021 I had my third treatment of the immunotherapy drugs. Three hours , a great visit with the nurses, but when I wanted to read I needed to put on the reading glasses. As the month progressed I noticed that my distance vision was starting to be impacted as well. We remembered what Dr. S-2 said to keep an eye on the vision and it it continued to get worse to go to The Eye Clinic at the hospital. On January 23, 2021 Roxanne and I went for a drive in the country, and for the first time in my life I did not feel comfortable driving.
The next day after Church we ended up at the eye clinic. Once again due to COVID Roxanne had to leave me alone. During that visit they took a CT of my brain and found that the lesion had continued to shrink in size. That was a positive. Back to the eye-clinic on the Monday, and a follow up appointment on the Friday. They put me on three different types of eye drops to see if that would help. The eyes continued to get worse, and I was no longer driving.
I sure missed getting behind the wheel of the car, driving around the city or even going on day trips out of the city. I learned that during this time that I did not make a good “side seat driver” while Roxanne was taking us to all the appointments and other places. I could not see properly but I was always giving instructions. It is funny to think about it now.
On February 2nd 2021 we saw the Oncologist Dr. S-2. We discussed the situation and he decided to stop treatments as he believed my vision loss was indeed a side effect of the Immunotherapy. At that time he put me on Prednisone in hopes that it would help and bring down any inflammation.
The next day I met Dr. S-3 for the first time. He is an ophthalmologist that specializes on the retina and other areas concerning the rear of the eye. It was interesting that all my doctors last name started with “S”. He advised me that I was his first vision loss associated with Immunotherapy. Seven colleagues in his office and none of them had ever encountered the situation. I had weekly appointments for most of February and he called other colleagues across Canada. He decided to give me steroid injections behind the eyes to see if it would help the retinas. At that time mine looked like a roller coaster.
Dr. S-3 and others started to marvel that I learned to “stack” reading glasses on top of each other to be able to watch TV and even shovel snow. I had to put aside any pride I might of had left to even wear 3 pairs to try and look at a menu in a restaurant. This is Daytona 500 weekend, last year on the same weekend, I remember wearing 3 pairs stacked (approx plus 10) to watch my favorite driver Michael McDowell win the race.
Throughout all the appointments, and all the questions, and all the unknowns our faith remained strong. Roxanne and I were trusting The Lord and seeking The Lord in greater ways. It was showing more and more that our trust was based on not only medicine but also God. The medical workers could see that there was something different about us. Even little things like never complaining. They say so many people complain at each and every appointment, we don’t do that. Because we know that the Lord wants us to share His love with others. He also wants us to grow out faith and not waiver.
I have taken way too much of your time today, thank you so much for all your support and comments. I appreciate you taking time to read about this journey, and please remember I am writing to encourage people. I want people to know that the creator of the universe loves them very much. Have a great week everyone, and remember God loves you.
James 1:6-8Tree of Life Version
6 But let him ask in faith, without any doubting—for the one who doubts is like a wave of the sea, blown and tossed by the wind. 7 For that person must not suppose that he will receive anything from the Lord— 8 he is a double-minded man, unstable in all his ways.